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About the ALSALA
| What is ALSA |
About the Staff |
Advocacy | Job Opportunities |
– n. 1. One who supports or defends a cause. 2.
One who pleads on behalf of another.
The ALS Advocacy Team
works together to keep elected officials apprised of ALS-specific legislation
and seek their support.
focusing on the following priorities:
1) To ensure that the implementation of the historic Medicare
Waiver law for ALS patients is a priority. At the close of the 106th Congress,
legislation was approved and a bill was signed into law that waived the
24-month waiting period for ALS patients to receive Medicare benefits.
HCFA has announced that the law is effective as of July 1, 2001. Communication
of this law through the Social Security Administration Office and through
every Member of Congress’ home district is essential for full implementation.
2) Advocate for the passage of legislation to make prescription
drug benefits available to Medicare beneficiaries. ALS advocates have
been communicating this important need to Members of Congress, including
the establishment of specific goals such as a stop-loss measure to ensure
adequate assistance for ALS patients.
3) Continue to work to double the National Institute of Health
(NIH) budget in five years. Currently, we are in the fourth year of this
goal. This year, we’ll be advocating a 16.1% increase or $3.4 billion
to continue our goal.
4) Define and develop a working strategy to meet the increasing
societal problems for home health care.
5) Advocate for a postal stamp to create awareness and have
a specific percent of the proceeds be dedicated to ALS research at the
NIH, similar to the breast cancer stamp.
with Senators and members of Congress we always stress the “ALS Core Messages”.
- ALS is a fatal
neurodegenerative disease affecting just over 5,000 new patients yearly
(nearly 15 new cases per day).
- On average, people
with ALS survive two to five years from the time of diagnosis.
- There is no known
cause, prevention or cure.
- ALS impacts the
- ALS is not just
Lou Gehrig’s disease, it’s anyone’s disease. Everyone is threatened
Our California State Senators are:
Dianne Feinstein (D)
Committees: Appropriations; Energy & Natural Resources;Judiciary;
Rules & Administration; Select Intelligence; Joint Printing
Senator Barbara Boxer (D)
Committees: Commerce, Science & Transportation; Environment &
Public Works; Foreign Relations
from the Greater Los Angeles Chapter areas are:
William M. Thomas, R - 21st District, Fresno
Committees: Ways & Means (Chair); Joint Taxation
The Honorable Lois Capps, D- 22nd District, Santa Barbara
Committee: Energy & Commerce
The Honorable Elton Gallegly, R - 23rd District, Oxnard
Committees: International Relations; Judiciary; Resources
The Honorable Brad Sherman, D - 24th District, Thousand Oaks, Woodland
Committees: Financial Services; International Relations
The Honorable Howard “Buck” McKeon, R - 25th District, Santa Clarita,
Committees: Armed Services, Educations & the Workforce Veterans’ Affairs
The Honorable Howard L. Berman, D - 26th District, Mission Hills
Committees: International Relations; Judiciary; Standards of Official
The Honorable Adam Schiff, D - 27th District, Pasadena
Committees: International Relations, Judiciary
The Honorable David Dreier, R - 28th District, Covina
Committee: Rules (Chair)
The Honorable Henry A. Waxman, D - 29th District, Los Angeles
Committees: Energy & Commerce; Government Reform
The Honorable Xavier Becerra, D - 30th District, Los Angeles
Committee: Ways and Means
The Honorable Hilda L. Solis, D - 31st District, El Monte, East Los
Committees: Education & the Workforce; Resources
District 32 – Sworn in June 6, 2001, The Honorable Diane Watson – more
information to follow.
The Honorable Lucille Roybal-Allard, D - 32nd District, Los Angeles
The Honorable Grace Napolitano, D - 34th District, Montebello
Committees: International Relations, Resources, Small Business
The Honorable Maxine Waters, D - 35th District, Los Angeles
Committees: Financial Services; Judiciary
The Honorable Jane F. Harman, D - 36th District, Redondo Beach
Committees: Energy and Commerce; Select Intelligence
The Honorable Juanita Millender-McDonald, D- 37th District, Torrance
Committees: Small Business, Transportation & Infrastructure
The Honorable Steve Horn, R - 38th District, Lakewood
Committees: Government Reform; Transportation & Infrastructure
provide a great opportunity for ALSA advocates and caregivers to meet
with their Senators and Representatives at home.
Dates subject to change.
If you would like
to a part of The ALS Association, Greater Los Angeles Advocacy Team please
complete the volunteer
application and you will be contacted by Molly Rockey, Director of
The ALS Association Greater
Los Angeles Chapter • P.O. Box 565, Agoura Hills, CA 91376-0565, Tel: (818)
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